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Our psychologist and social worker will be able to help you and your child adjust to the changes and special needs that this condition requires.
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Depending on the location and severity of the lesion, your child may need to be evaluated by many specialists including dermatologists, cardiologists, ophthalmologists, neurologists, radiologists, otolaryngologists, plastic surgeons, and general surgeons. The Vascular Lesion Center at Lurie Children's includes multidisciplinary specialists that are available to meet your child and develop a specialized plan of care that meets their unique needs.
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Proteus syndrome can present in many different ways and treatment depends on the location and severity of the malformations.
![proteus syndrome proteus syndrome](https://els-jbs-prod-cdn.jbs.elsevierhealth.com/cms/attachment/2005325232/2022877820/gr1.jpg)
The overgrowth is usually disproportionate, with one area enlarging more than others. Some infants will be born with areas of overgrowth, but other areas of overgrowth may occur later and in areas of the body that appeared normal at birth. The overgrowth can involve all areas of the body. Children may also have a variety of vascular malformations such as capillary, venous or lymphatic malformations.
Proteus syndrome skin#
Many of these children have epidermal nevi, an overgrowth of the top layer of the skin (epidermal tissue). Non-cancerous fatty tumors may be apparent below the skin or in different locations throughout the body. Proteus syndrome is a rare and sporadic disorder that causes postnatal overgrowth of multiple tissues in a mosaic pattern. Hamartomas (non-cancerous tumor-like growths of tissue) made of connective tissue are often seen on children’s palms and soles as extra folds and creases. This syndrome is caused by a genetic mutation. The overgrowth can involve many different tissues, such as the nervous system, the skin and tissue below the skin, connective tissue and organs. Our multidisciplinary team of pediatric experts works together to educate families and to evaluate and treat children with all types of these vascular lesions.Proteus Syndrome is a rare syndrome and is considered a progressive overgrowth syndrome. The vascular anomalies program at Comer Children's offers an integrated and comprehensive approach to the diagnosis, care and management of vascular malformations.